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| Our "Team" in Seattle (Greg Edie Yvonne Kevin) |
I opened my eyes to a new kind of way...
What an opening for a great couple of songs. I was never much of a Journey guy, just heard these songs listening to a great classic rock station in Kauai; "Shaka 103" for some reason I couldn't get them out of my mind. I will get back to Journey later...
I have to apologize for being lazy and not posting for awhile. I have a lot to say but decided to go computer free for 9 days right after we had a visit from my life saver/Donor Edie and her family.
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| Big Climb team |
We next met up at the Columbia Building for the Big Climb on Sunday. I couldn't climb due to weakness, but was able to shepherd the ECC and myself up to the 76th floor to greet our team, and coach Yvonne. Our racers were fast, I think they beat us to the top and we took the elevators! It was a sunny day and views were beautiful. We eventually went down and many of us went to lunch at Fado (Irish place). Our team did a great job in fund raising, close to $10,000 raised for the Leukemia/Lymphoma Society.
The visit from the ECC was quick, they had to catch a plane early Monday morning back to Boston.
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| Almost in the air, Natalie, Sam Y and G |
We made last minute plans ourselves and thanks to air miles we went to Kauai Monday morning. Cam and Kristen offered us a place to stay with them in Poipu, it was a great trip to get away and see some sun- Thank you C and K! After four days in Kauai we switched islands to Oahu to see our Daughter and Son-in-law Sam. They have a nice home in Hawaii Kai - about 15 miles east of Waikiki. We were able to do a sunset cruise off the north shore, and a glider ride also on the north shore at Dillingham field. We were also able to swim, snorkel, and play at Makapuu and the north shore beaches. There were still some big waves, and the Shrimp shack on the trip was yummy!
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| Arlene Murphy (cousin and ECC) |
Back to Journey- The band started in the early 1970's San Francisco after Gregg Rolie and Neil Schon came from the Santana band. Many iterations later I think they are still touring and making a lot of money. Steve Perry joined the group in 1977 he stayed around while Journey made most of their hits. Perry's vocals took the group to a higher high, no pun intended. His Tenor voice can be heard on such hits as "Send her my love", "Faithfully," "Open arms", "Don't Stop Believin", and many more.
I am still looking for a new kind of way, I'd take a clinical trial or other treatment option while I continue in my relapse. I will be in Chemo M-W-F next week in Tacoma with my old friend Nelarabine. I am hoping it can stop the lymphoma lesions/tumors that seem to be growing more and multiplying. So far the cancer action is limited to the lesions and not in my blood or bone marrow. If the chemo works it can buy me some more time to enjoy life, look for options, etc. Our tan is already fading, Easter is almost here, Yvonne went back to work part time at another clinic, and it has been dry since we got home. Good Friday to all, Live Happy!




33 comments:
Excellent post, glad you had a good time and are safely home, Prayers, Blessings to You and Yours
Hank
Glad you had a good climb and a good visit in Hawaii. Keep the chin up and hope the chemo isn't too hard on you. If you get downtown again, robin and I are at the inn at Virginia mason. We will be here for a while. TRex
Greg You got it right going to Hawaii as the Island majic is the best healer God be with you always
Aloha my friend
Greg and Yvonne, so good to get an update and hear about all your wonderful adventures. Been wonderin'.... Glad the big climb was a great success with your team and fundraising. What a wonderful thing to visit with Edie and family and Arlene. And Hawaii--the best medicine there is. After you all got us over there for our first time, I have to agree it is magic. Hoping it works wonders. All we can do is keep on keepin' on. Great post and loved the video!
love, prayers, and hugs,
Mary D.
Good to get an update, glad you got to go to Hawaii. I'm glad Les and went when we did. Praying for success with the chemo
Love, Cathy
boy can you pack a lot into a little time. your endurance and energy amaze and inspire me. i am thrilled for the climb and also the hawaii time. but most of all i am in awe of your determination and can /will do attitude. you are an inspiration to us all.fondly, dan and sharon
boy can you pack a lot into a little time. your endurance and energy amaze and inspire me. i am thrilled for the climb and also the hawaii time. but most of all i am in awe of your determination and can /will do attitude. you are an inspiration to us all.fondly, dan and sharon
Hi Greg & Yvonne,
I am so happy to hear you had a little R & R in Hawaii with friends & family!
Can't tell you enough how wonderful it was to see you guys & a little of the Seattle sunshine. Thank you for greating us so warmly. I will be thinking about you next week - hope the treatments don't knock you down too much - but I know you will get right back up.
Did you see my pics?
Take care - Happy Easter - Hope & Love sent your way from the Chiasson's
oops greeting
Thanks for the inspiration everyone! I am upbeat, Yvonne will be with me so we will make the best of the three days- The Nelarabine shouldn't hit me until the week after treatments, so I have some time to enjoy some of our Spring. It's sunny today, yeah! Kenny, a visit today???
Glad you had fun in Hawaii!
Love Steve Perry!
A glider huh! Your a brave man. It all sounds wonderful. I am so glad you had a great trip. JoAnn is still keeping up with her stairs. I am amazed and inspired by both of you. Praying for good remission. Wishing you well, Eloise
Hey TTB, when are you done with the rat race? Eloise, I was much more willing to glide than dive- from the sky that is. We got a good deal on the glider too. Day one of chemo went well, only minimal effects so far. Day two tomorrow...
Continued Prayers !
Hey 5-0 (E),
About a month my friend!
Coffee soon I hope!
Greg, Cathy fell while walking her dog, eight stitches above the eye. Wish that i was closer to help in some way. Love Dad and Alice
Thanks Dad,
I'll have to stop being so stubborn. There's people here to help ifbi just ask. Greg I hope the chemo is going well, and Dad I hope you are feeling better, too.
Greg, how did the treatments go? We are doing ok , except for my blood pressure. It gets very low at times, so when that happens i sit down . I am in cardio rehab now , three days a week. Keep us up to date on your results. Love Dad and Alice
Hi Dad, TTB, Cathy and others!
I am just leaving for the last of three chemo sessions with Nelarabine. I am trying this out as a few more lesions/tumors have started to grow, and the other three I had are getting bigger/painful. So far the Nelarabine isn't doing anything other than making me tired. Next will be losing taste, and hopefully slowing down of the growths. If N doesn't work then I will try Clofarabine, a bit more caustic but did do some good the last time I took it. I am also having a biopsy next week to determine just what is growing all over me. Dad, I am happy to hear that you are in Rehab, at least it's not for drugs or alcohol! Cathy is amazing, I definitely sympathize with wanting to get out and walk...TTB- how about early Friday April 20?
Wishing all the Dymerski's some sunshine!
Prayers !
Edie, let's all hope for a Bruins win in regulation and the Red Sox sweep for the weekend. The Mariners are headed for .500 me thinks...
This is Yvonne. We have another fun Saturday in the ER. Greg started running a fever around 2 am and as it got up to 101.5 we called the doctor and came to ER. Now we are waiting for a bed on the usual 10th floor at ST Josephs in Tacoma. The hour of sleep we both had we thought his fever was breaking. They started,2 different antibiotics, fluids and restarted his shots for his pulmonary embolism and lots of blood cultures testing for infections. It could possibly be the pneumonia. Intervential radiology wanted Greg off his Fragmin for 5 days for his embolism to do his biopsy of his tumors next Tuesday.We new it should be 24 hours but they insisted 5 days. The on call doctor was not happy about this.Greg also had tachycardia and low oxygen levels. He has made good progress so far in all areas.So we sit here waiting for a room on the 10th floor. To be continued....
Everyone enjoy your Saturday and hopefully it is sunny where you are at. It is very nice here but no windows in the ER. Soon we move out! Yeah!!!!
Yvonne
Prayers Kids! :-) Lord Bless and Keep You Both
Hank
Prayers for you
Love, Cathy
Just reading your update on your ER visit. It is now the 17th and I am hoping you are doing much better. You have to try and stay out of those ER's!
Great win for the Bruins last night! We can only hope the Sox can keep it together - they have the talent. Valentine needs to keep his criticisms in the club house.
We are having beautiful weather this week - yesterday was actually a little too warm. Strange for this time of year - usually we would be having your weather in April.
Wishing you a much better week!
Greg, hoping you visit with your brother and sister goes well. Wish i could be there with you> Love Dad and Alice
Thinking about you and hoping you are able to turn your back on the hospital soon. I have some more ammunition to bring to our on-going global warming debate.
Carol, I never said mother Earth isn't warming up. Just not sure evil man is entirely to blame- yes debating is always fun especially with people who could be a MENSA somebody. Thanks for the encouragement Edie, day five here at the hospital and I think I have a good lead on my fever/shortness of breath thing...My brother Alan and sister Cathy come up from Portland yesterday, a great visit. Dave from Enumclaw and Mikhael our son also stopped by for some good times. My inside phone number here is 253-426-1032
Things can sure change fast around here when it tzkerds me twenty minutes t0 get to this spot. A little turn for the worse, hopeullly they get mr figiuyed out. God Bless everyone1
Prayers for your healing
Love you,
Cathy
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